Bulgaria Ski discussion board
Raynards disease / phenomenom
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posts : 13 (Beginner)Date : 11-23-08 16:10Raynards disease / phenomenom
I have been skiing a couple of times and would dearly love to come back to Borovets again but this summer I found out that I had Raynards. This is where at the slightest hint of anything cold all my extremities go icy and they turn a grey colour and then sometimes black as the blood supply is cut off.Does anyone else have this and do they have any ideas that combat it to enable them to go skiing.
re: Raynards disease / phenomenom
Hi Zedee,Just done a quick search on Raynards....not nice at all!
There is mention that many people with this disease have not been tested for Celiac.
It also points out that by taking the usual precautions Celiacs take can help people with Raynards.
re: Raynards disease / phenomenom
Hi Zedee,
funnily enough, i suffer with Raynards. Fingers go white, then blue/black and completely dead. When the feeling does start to come back, it feels like i have throbbing bananas stuck to my hands !!! Tell you what i do. First of all, i make sure that i have really good gloves and i also buy those hand warming pads. They are absolutely excellent !! I used to work in a golf club and they sold them in there for the golfers in winter so i bought about a dozen of them. They are ...
funnily enough, i suffer with Raynards. Fingers go white, then blue/black and completely dead. When the feeling does start to come back, it feels like i have throbbing bananas stuck to my hands !!! Tell you what i do. First of all, i make sure that i have really good gloves and i also buy those hand warming pads. They are absolutely excellent !! I used to work in a golf club and they sold them in there for the golfers in winter so i bought about a dozen of them. They are ...
Hi Zedee,
funnily enough, i suffer with Raynards. Fingers go white, then blue/black and completely dead. When the feeling does start to come back, it feels like i have throbbing bananas stuck to my hands !!! Tell you what i do. First of all, i make sure that i have really good gloves and i also buy those hand warming pads. They are absolutely excellent !! I used to work in a golf club and they sold them in there for the golfers in winter so i bought about a dozen of them. They are called "Hand Warmer" and you get two in a pack (obviously - for both hands). I can't see a makers name or anything but the address on the back is Mycoal Warm Packs, etc etc. To be honest, i think you can get them on ebay as well. Anyway, hope that helped.
Steff
funnily enough, i suffer with Raynards. Fingers go white, then blue/black and completely dead. When the feeling does start to come back, it feels like i have throbbing bananas stuck to my hands !!! Tell you what i do. First of all, i make sure that i have really good gloves and i also buy those hand warming pads. They are absolutely excellent !! I used to work in a golf club and they sold them in there for the golfers in winter so i bought about a dozen of them. They are called "Hand Warmer" and you get two in a pack (obviously - for both hands). I can't see a makers name or anything but the address on the back is Mycoal Warm Packs, etc etc. To be honest, i think you can get them on ebay as well. Anyway, hope that helped.
Steff
re: Raynards disease / phenomenom
Thank you for the advice Steff, I have used these pads but they need to be reactivated after each go which would put a huge weight on air luggage and I know that there are battery powered ski gloves on the market that also keep hands warm but it is not only my fingers that go but also my feet.Does anyone use these gloves and how good are they.
re: Raynards disease / phenomenom
Wow, i have never heard of those, what a good idea. Will have to look into itS
re: Raynards disease / phenomenom
Have you tried the heat pads that you activate for heat. Once used you boil them like an egg ready for use again. We have quite a few but I suppose you need constant warmth.You can also buy soles that are heated for your boots, could give them a whirl to get you back on the slopes too. Hope you have success!
Arron
re: Raynards disease / phenomenom
Arron,Where can I buy the heated soles for the boots.
re: Raynards disease / phenomenom
Anyone know where these heated inner soles are to buy and how do they work.I have got to get geared up before I book my holiday so I don't want to leave it too late.
Richard.
re: Raynards disease / phenomenom
Sorry for the delayHave been trying to find the specific one's for you. To whet your appetite thoughMaplin have some cheaper soles
re: Raynards disease / phenomenom
My mum although she doesnt suffer from raynards has heated boots, although these would mean you would have to buy new boots.They have a small battery back which clips on the back of the boots and so they say last up to 8 hours.
Il have a check on the make of the boots but im sure we got them from ellis bringham in milton keenes.
My cousin has just recently been diagnosed with raynards so we have been looking at a few ideas to keep her warm so she can come up the mountain with us.
